Links and Resources
Early Childhood Workshops and NDIS Information Sessions are still running and are accessable by contacting your local Carers Association for information on sessions in your area.
Carers Victoria - www.carersvictoria.org.au
Carers NSW - www.carersnsw.org.au
Carers SA - www.carerssa.com.au
Carers WA - www.carerswa.asn.au
Carers QLD - carersqld.com.au
Carers TAS - www.carerstas.org
Carers NT - www.carersnt.asn.au
Carers ACT - www.carersact.org.au
Facts and information for parents of child with a disability or medical condition, including how to:
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understand and get the most from the NDIS
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manage everyday challenges
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manage uncertainity and grief
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look after yourself
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find resources and useful tools
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find and use early childhood and mainstream services
Listed below are a range of resources providing help and support in regard to the disabilities covered by the Better Start initiative, and other relevant information. Click on any link in the below list to view the relevant resources available.
Cerebral Palsy
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Northcott Disability Services (NSW) |
Carpentaria Disability Services (NT) |
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CPL – Choice, Passion, Life (formerly the Cerebral Palsy League) |
Cootharinga North Queensland |
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Community Accommodation and Respite Agency |
Spastic Centres of South Australia |
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Leveda (South Australia) |
Novita Children’s Services (South Australia) |
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Cerebral Palsy Tasmania |
Cerebral Palsy Support Network (CPSN) |
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Scope Victoria |
Yooralla (Victoria) |
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Ability Centre |
Cerebral Palsy Alliance (NSW & ACT) |
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Cerebral Palsy Australia |
Cerebral Palsy Education Centre |
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Senses Australia (WA)
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Cerebral Palsy Group |
Deafblindness
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Senses Australia (WA) |
Able Australia (Victoria) |
| Royal Institute for Deaf and Blind Children Ph: (02) 9871 1233 (TTY/V) Em: online@ridbc.org.au Web: www.ridbc.org.au |
The Deaf Society of New South Wales
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Down Syndrome
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Down Syndrome NSW |
Down Syndrome Victoria |
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Down Syndrome Association of Queensland Inc |
ACT Down Syndrome Association |
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Down Syndrome Tasmania Inc |
Down Syndrome Association of Western Australia Inc |
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Down Syndrome Association of Northern Territory Inc |
Down Syndrome Society of South Australia Inc |
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Foundation 21 (South Australia) |
Down Syndrome Australia |
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Senses Australia (WA)
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Fragile X
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Fragile X Association of Australia |
Fragile X Alliance Inc (Victoria) |
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Senses Australia (WA)
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Hearing impairment
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Aussie Deaf Kids |
Australian Hearing |
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The Shepherd Centre |
Senses Australia (WA) |
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Deaf Children Australia |
Deafness Forum of Australia |
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The Deaf Society of New South Wales |
Parent Council for Deaf Education |
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Royal Institute for Deaf and Blind Children |
Better Hearing Australia (Victoria) Ph: 1300 242 842 Web: www.betterhearing.org.au |
| ACT Deafness Resouce Centre Ph: (02) 6287 4393 Web: www.actdrc.org.au |
Tasdeaf |
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Vision impairment
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Vision Australia |
Blind Citizens Australia |
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Royal Institute for Deaf and Blind Children |
The Royal Society for the Blind
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Guide Dogs Victoria |
Guide Dogs Queensland Ph: 1800 810 122 Web: www.guidedogsqld.com.au |
| Guide Dogs NSW/ACT Ph: (02) 9412 9300 Web: www.guidedogs.com.au |
Association for the Blind (Guide Dogs WA) |
| Guide Dogs SA/NT Ph: 1800 738 855 Web: www.guidedogs.org.au |
Guide Dogs Tasmania |
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Royal Society for the Bling of SA |
Senses Australia (WA) Ph: (08) 9473 5400 Em: customerserviceadvisor@senses.org.au Web: www.senses.org.au |
Angelman Syndrome
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Angleman Syndrome Association |
Angelman Syndrome Association of Western Australia Inc Ph: 0408 445 975 Web: www.angelmanwa.com.au |
| Senses Australia (WA) Ph: (08) 9473 5400 Em: customerserviceadvisor@senses.org.au Web: www.senses.org.au |
Genetic Alliance Australia
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CHARGE Syndrome
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CHARGE Syndrome of Australasia
Senses Australia (WA) |
Genetic Alliance Australia
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Cornelia de Lange Syndrome
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Cornelia de Lange Syndrome Association (Australasia) Inc.
Senses Australia (WA) |
Genetic Alliance Australia |
Cri du Chat Syndrome
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Cri du Chat Support Group of Australia Inc
Senses Australia (WA) |
Genetic Alliance Australia
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Kabuki Syndrome
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Australian Kabuki Syndrome Association Inc.
Supporting Aussie Kids with Kabuki Syndrome |
Genetic Alliance Australia |
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Senses Australia (WA)
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Microcephaly
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Microcephaly Australia
Senses Australia (WA) |
Genetic Alliance Australia
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Prader Willi Syndrome
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Prader-Willi Syndrome (PWS) Association of Australia Inc.
PWSA of Victoria
Prader-Willi Syndrome Association of Western Australia |
Genetic Alliance Australia Ph: 02 9295 8359
Senses Australia (WA) |
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Williams Syndrome
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Williams Syndrome Association of SA Inc.
Senses Australia (WA) |
Genetic Alliance Australia |
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Smith-Magenis Syndrome
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Genetic Alliance Australia Ph: 02 9295 8359 Email: info@geneticalliance.org.au Website: www.geneticalliance.org.au
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Senses Australia (WA) |
Rett's Disorder
Information from the Department of Social Services on the eligibility of Rett's Disorder for Better Start support.
Medicare Information
Click here for information on family and individual entitlements, as well as information for parents and healthcare professionals.
National Disability Insurance Scheme
1800 800 110
Other information and services
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Playgroup Australia |
Raising Children Network |
