Links and Resources

Early Childhood Workshops and NDIS Information Sessions are still running and are accessable by contacting your local Carers Association for information on sessions in your area.

Carers Victoria - www.carersvictoria.org.au

Carers NSW -  www.carersnsw.org.au

Carers SA - www.carerssa.com.au

Carers WA - www.carerswa.asn.au

Carers QLD - carersqld.com.au

Carers TAS - www.carerstas.org

Carers NT - www.carersnt.asn.au

Carers ACT - www.carersact.org.au

 

Facts and information for parents of child with a disability or medical condition, including how to:

  • understand and get the most from the NDIS

  • manage everyday challenges

  • manage uncertainity and grief

  • look after yourself

  • find resources and useful tools

  • find and use early childhood and mainstream services

Listed below are a range of resources providing help and support in regard to the disabilities covered by the Better Start initiative, and other relevant information. Click on any link in the below list to view the relevant resources available.

 

Cerebral Palsy

Northcott Disability Services (NSW)
Ph:  1800 818 286
Em:  nc@northcott.com.au
Web:  www.northcott.com.au

Carpentaria Disability Services (NT)
Ph:  (08) 8920 9424
Em:  greg.mcmahon@carpentaria.org.au

CPL – Choice, Passion, Life (formerly the Cerebral Palsy League)
Ph:  1800 275 753
Em:  info@cpl.org.au
Web:  www.cpl.org.au

Cootharinga North Queensland
Ph:  (07) 4759 2000
Em:  CNQ@cootharinga.org.au
Web:  www.cootharinga.org.au

Community Accommodation and Respite Agency
Ph:  (08) 8347 4588
Em:  cara@cara.org.au
Web:  www.cara.org.au

Spastic Centres of South Australia
Ph:  (08) 8347 2664
Em:  info@scosa.com.au
Web:  www.scosa.com.au

Leveda (South Australia)
Ph:  (08) 8256 9800
Em:  leveda@leveda.org.au
Web:  www.leveda.org.au 

Novita Children’s Services (South Australia)
Ph:  (08) 8243 8243
Em:  enquiries@novita.org.au
Web:  www.novita.org.au 

Cerebral Palsy Tasmania
Ph:  001 141
Em:  info@cptas.org.au
Web:  www.cptas.org.au 

Cerebral Palsy Support Network (CPSN)
Ph:  1300 277 600
Em:  cpsn@cpsn.org.au
Web:  www.cpsn.org.au

Scope Victoria
Ph:  (03) 9843 3000
Em:  contact@scopevic.org.au
Web:  www.scopevic.org.au 

Yooralla (Victoria)
Ph:  03) 9666 4500
Em:  yooralla@yooralla.com.au
Web:  www.yooralla.com.au 

Ability Centre
Ph:  1300 106 106
Em:  info@abilitycentre.com.au
Web:  www.abilitycentre.com.au 

Cerebral Palsy Alliance (NSW & ACT)
Ph: 1300 888 378
Em:  info@cerebralpalsy.org.au
Web:  www.cerebralpalsy.org.au

Cerebral Palsy Australia
Ph:  (08) 8243 8202
Web:  www.cerebralpalsyaustralia.com

Cerebral Palsy Education Centre
Ph: (03) 9560 0700
Em:  info@cpec.org.au
Web:  www.cpec.org.au

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

 

 Cerebral Palsy Group

Web:www.cerebralpalsygroup.com/cerebral-palsy

Deafblindness

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Able Australia (Victoria)
Ph:  1300 225 369
TTY:  (03) 9882 6786
Em:  info@ableaustralia.org.au
Web:  www.ableaustralia.org.au

Royal Institute for Deaf and Blind Children
Ph:  (02) 9871 1233 (TTY/V)
Em:  online@ridbc.org.au
Web:  www.ridbc.org.au

The Deaf Society of New South Wales
Ph:  (02) 8833 3600
TTY:  (02) 8833 3691
Em:  info@deafsociety.com
Web:  www.deafsocietynsw.org.au

 

Down Syndrome

Down Syndrome NSW
Ph:  (02) 9841 4444
Em:  admin@dsansw.org.au
Web:  www.dsansw.org.au

Down Syndrome Victoria
Ph:  1300 658 873
Em:  info@dsav.asn.au
Web:  www.downsyndromevictoria.org.au

Down Syndrome Association of Queensland Inc
Ph:  (07) 3356 6655
Em:  office@dsaq.org.au
Web:  www.dsaq.org.au

ACT Down Syndrome Association
Ph:  (02) 6290 0656
Em:  admin@actdsa.org.au
Web:  www.actdsa.org.au

Down Syndrome Tasmania Inc
Ph:  1300 592 050
Em:  info@downsydrometasmania.org.au
Web:  www.downsyndrometasmania.org.au

Down Syndrome Association of Western Australia Inc
Ph:  1800 623 544
Em:  dsawa@upnaway.com
Web:  www.dsawa.asn.au

Down Syndrome Association of Northern Territory Inc
Ph:  (08) 8985 6222
Em:  dsant@octa4.net.au 

Down Syndrome Society of South Australia Inc
Ph:  (08) 8369 1122
Em:  info@downssa.asn.au
Web:  www.downssa.asn.au 

Foundation 21 (South Australia)
Ph:  (08) 8367 8022
Em:  ef21@org.au
Web:  www.f21.org.au 

Down Syndrome Australia
Ph:  1300 881 935
Em:  info@downsyndrome.org.au
Web: www.downsyndrome.org.au


Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

 

 

Fragile X

Fragile X Association of Australia
Ph: 1300 394 636
Em:  support@fragilex.org.au
Web:  www.fragilex.org.au

Fragile X Alliance Inc (Victoria)
Clinic and Resource Centre

Ph:  (03) 9528 1910
Em:  jcohen@travelclinic.com.au
Web:  www.fragilex.com.au

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

 

 

Hearing impairment

Aussie Deaf Kids
Ph:  (02) 8197 0444
Em:  info@aussiedeafkids.org.au
Web:  www.aussiedeafkids.org.au

Australian Hearing
Ph:  131 797
Web:  www.hearing.com.au

The Shepherd Centre 
Ph:  (02) 9351 7888
Web:  www.shepherdcentre.org.au  
Email: cpa@shepherdcentre.org.au

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Deaf Children Australia
Helpline:  1800 645 916
TTY:  (03) 9510 7143
Em:  helpline@deafchildren.org.au
Web:  www.deafchildrenaustralia.org.au

Deafness Forum of Australia
Ph:  133 677
TTY:  (02) 6262 7809
Web:  www.deafnessforum.org.au

The Deaf Society of New South Wales
Ph:  (02) 8833 3600
Em:  info@deafsociety.com
Web:  www.deafsocietynsw.org.au

Parent Council for Deaf Education
Ph:  (02) 9871 3049
TTY:  (02) 9871 3025
Em:  pcde@bigpond.com
Web:  www.pcde.org

Royal Institute for Deaf and Blind Children
Ph:  (02) 9871 1233 (TTY/V)
Em:  online@ridbc.org.au
Web:  http://www.ridbc.org.au/

Better Hearing Australia (Victoria) 
Ph:  1300 242 842
Web:  www.betterhearing.org.au
ACT Deafness Resouce Centre 
Ph:  (02) 6287 4393
Web:  www.actdrc.org.au

Tasdeaf
Ph: (03) 6231 6501
Web: www.tasdeaf.org.au 

 


Vision impairment

Vision Australia
Ph:  1300 847 466
TTY:  (02) 9334 3260
Em:  info@visionaustralia.org.au
Web:  www.visionaustralia.org.au

Blind Citizens Australia
Ph:  1800 033 660
TTY:  (03) 9639 1728
Em:  bca@bca.org.au
Web:  www.bca.org.au

Royal Institute for Deaf and Blind Children
Ph:  (02) 9871 1233 (TTY/V)
Em:  online@ridbc.org.au
Web:  www.ridbc.org.au

The Royal Society for the Blind
Ph: (08) 8417 5599
Web: www.rsb.org.au

 

Guide Dogs Victoria
Ph: (03) 9854 4444
Web: www.guidedogsvictoria.com.au

Guide Dogs Queensland
Ph: 1800 810 122
Web: www.guidedogsqld.com.au
Guide Dogs NSW/ACT
Ph: (02) 9412 9300
Web: www.guidedogs.com.au 

Association for the Blind (Guide Dogs WA)
Ph: 1800 847 466
Web: www.guidedogswa.com.au

Guide Dogs SA/NT
Ph: 1800 738 855
Web: www.guidedogs.org.au

Guide Dogs Tasmania
Ph: 1800 484 333
Web: www.guidedogstas.com.au

Royal Society for the Bling of SA
Ph: (08) 8232 4777
Web: www.rsb.org.au


Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Angelman Syndrome

Angleman Syndrome Association
Ph:  0438 835 886
Em:  president@angelmansyndrome.org
Web:  www.angelmansyndrome.org

Angelman Syndrome Association of Western Australia Inc
Ph:  0408 445 975
Web:  www.angelmanwa.com.au

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au

 

 


 

CHARGE Syndrome

CHARGE Syndrome of Australasia
Em:  ken.charge@hotmail.com
Web:  www.chargesyndrome.org.au

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au

 


 

Cornelia de Lange Syndrome

Cornelia de Lange Syndrome Association (Australasia) Inc.
Ph: (02) 9211 1462
Web: www.cdls.org.au 

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au




 

Cri du Chat Syndrome

Cri du Chat Support Group of Australia Inc
Ph: (03) 9775 9962
Web:  www.criduchat.asn.au 

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au

 


 

Kabuki Syndrome

Australian Kabuki Syndrome Association Inc.
Web:  www.kabukisyndromeassoc.com.au

 

Supporting Aussie Kids with Kabuki Syndrome
Ph:  0422 608 858
Web:  www.sakks.org

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au



Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

 


Microcephaly

Microcephaly Australia
Web:  www.facebook.com/pages/Microcephaly-Australia

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au

 


 

Prader Willi Syndrome

Prader-Willi Syndrome (PWS) Association of Australia Inc.
Web:  www.pws.org.au

 

PWSA of Victoria
Ph:  0451 797 284
Web:  www.pws.asn.au

 

Prader-Willi Syndrome Association of Western Australia
Ph:  0439 436 344

Genetic Alliance Australia

Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au





 


Williams Syndrome

Williams Syndrome Association of SA Inc.
Ph:  (08) 7329 5409
Web:  www.wsasa.org.au

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Genetic Alliance Australia
Ph: 02 9295 8359
Email: info@geneticalliance.org.au
Website: www.geneticalliance.org.au


 


Smith-Magenis Syndrome

Genetic Alliance Australia

Ph: 02 9295 8359

Email: info@geneticalliance.org.au

Website: www.geneticalliance.org.au

 

Senses Australia (WA)
Ph:  (08) 9473 5400
Em:  customerserviceadvisor@senses.org.au
Web:  www.senses.org.au

Rett's Disorder

Information from the Department of Social Services on the eligibility of Rett's Disorder for Better Start support.

Medicare Information

Click here for information on family and individual entitlements, as well as information for parents and healthcare professionals.

National Disability Insurance Scheme

https://www.ndis.gov.au/ 

1800 800 110

Other information and services

Playgroup Australia
Ph:  1800 171 882
Em:  info@playgroupaustralia.com.au
Web:  www.playgroupaustralia.com.au

 Raising Children Network

Web: www.raisingchildren.net.au


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